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In 2016, the ASTB carried out an online survey in order to gain a better understanding of TSC patients and caregivers’ situation and needs.

Results were first disclosed at the ASTB’s “Families Day” in March 2017. The ASTB was then invited to the 2017 World TSC Conference in Washington to present the conclusions of the survey.

To read the English presentation, please click on the picture below :

 

 

 

ENG - Livre blanc

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